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The KdVS Patient Advocacy Summit strives to equip families with up-to-date research and expert information on KdVS, encompassing medical, educational, and developmental aspects. This knowledge has the potential to significantly impact and potentially save lives. Additionally, the summit facilitates collaboration between doctors, specialists, researchers, and KdVS families to gather concrete data, advance research, and evaluate needs.
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Timings09:00 AM-06:00 PM (expected)Not Verified | Entry FeesCheck Official Website |
Estimated Turnout100 - 500 Delegates Based on previous editions | Event TypeConference |
EditionsJul 2023+1 more edition Frequency Biennial Next edition likely in Jul 2025 | Official LinksWebsiteContactsReport Error Claim this event |
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Koolen-de Vries Syndrome FoundationUSA2 Total Events | |
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Orlando, United States
Manager, Human Resources
Orlando, United States
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Orlando, United States
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Orlando, United States
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Orlando, United States
CEO & President
Orlando, United States
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Orlando, United States
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Orlando, United StatesWrite a Review
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6677 Sea Harbor Dr, Orlando, FL 32821
USA
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