The KdVS Patient Advocacy Summit strives to equip families with up-to-date research and expert information on KdVS, encompassing medical, educational, and developmental aspects. This knowledge has the potential to significantly impact and potentially save lives. Additionally, the summit facilitates collaboration between doctors, specialists, researchers, and KdVS families to gather concrete data, advance research, and evaluate needs.
Timings09:00 AM-06:00 PM (expected)
Entry FeesCheck Official Website
Estimated Turnout100 - 500
DelegatesBased on previous editions
+1 more edition
Next edition likely in Jul 2025
Claim this event
Queries about the event? Ask Organizer
Koolen-de Vries Syndrome FoundationUSA2 Total Events
How did you participate in this event?
Followers [ Users who have shown interest for this Event ] Join Community Invite